I can not believe how difficult the recovery from radiation has been. I am now 2 weeks out from the end of radiation and FINALLY I am feeling better. I am still tired more than I think I should be- which I know is normal, but I can deal with tired. The pain is what I had a hard time dealing with.
Toward the end of treatment I started getting burned, but also I started to swell under my arm. They gave me all sorts of creams to use, and it did help the burn, but nothing was helping the swelling get any better, and I realized that the swollen area is where I was having the most pain. I dipped into my leftoever vicodin and tramadol and honestly- I was taking a hefty dose every 4 hours! Finally last week, I called the radiation oncologist to ask for more pain meds. Get this- they asked who had rx'd the ones I had been taking. Well- they were left over from my mastectomy I had last summer. He wanted me to call THAT doctor to get a refill. What the fuck? HE is the one that did this too me- burned me and made me all swollen. The surgeon isn't going to refill my pills- that is INSANE! Finally, his nurse contacted my medical oncologist and had HER refill my meds. Yes, at least I got them filled, but seriously it is messed up that Dr. Cavey wouldn't give me an rx himself. Jerk! After a few more days of being heavily medicated and still not really getting any relief, I come to the conclusion that I had developed truncal lymphedema. I guess usually people that have had lymph nodes removed get lymphedema in their arm, but instead I got it in my chest. This explained why the swelling was still not getting any better, and also why I was in a great deal of pain. I called my lymphedema therapist to see if she could see me and help get the swelling down. Unfortunately she needed a new referral from my radiation oncologist. Well- from recent events, I am betting you might know how this turns out- yep! He did NOT send in any referral or do anything else to help me. I called that office nearly every day last week and they basically did nothing to help me. Throughout this whole cancer ordeal, I have been relatively upbeat and have dealt with everything pretty well. The last month though, has been terrible. I have been depressed, and extremely anxious, and weepy. I know that it is because I was in pain all the time, never getting any relief from it. And then to have the doctor basically ignore my needs just about put me over the edge.
Last Thursday I was panicking, because I just couldn't deal with the fact that I would still be in constant pain over the upcoming weekend. Nobody would see me or help me. I finally thought to call my massage therapist. He is very kind and has offered to help me ever since I was diagnosed. I haven't had a chance to see him though because I have really been way too busy. I wasn't sure if he would even be able to help with lymphatic drainage- luckily he did know how to do manual lymph drainage, and he was able to see me on Friday. I was worried about the appointment because I couldn't tolerate being touched. I couldn't even handly my clothing touching me under my arm. For the last week I have been wearing a tank top turned inside out so that the seam wouldn't rub my skin. By the end of my appointment, the swelling had already started to go down quite a bit! It is now Tuesday and the swelling is completely gone. I am so glad to not be in constant pain anymore. Also, most of my radiated skin has peeled off and is starting to look like normal skin! yeah!
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